Greetings, All.
Another day! Our babies our one week old today. We have created somewhat of a routine. We call in at 8am after the nurses change shifts. After the call, we slowly get ready and begin the drive in to the NICU. We visit the kids for a couple of hours and then make the trip back home.
Jonas (in blue with the sweet sunglasses on) has been struggling a bit the past days. His lungs are a bit beat up and he needs the help of platelets and prayers over the next couple of days. The doctor has a couple of plans depending on how Jonas responds over the next couple of days.
Elsa (in pink) has been fairly stable over the past few days. She is still on room air with the help of a ventilator.
Both kiddos are getting a belly full of milk every four hours and we are hoping that they continue to fatten up:) The holidays are for belt loosening after all!
We have been blessed with many calls of support, hand crafted meals (and restaurant created pizzas too!), and other stories of miracles over the past several days.
There are many things to worry and pray about but we are so thankful that our babies are under the watch and care of the nurses and doctors at the NICU at Tacoma General. We have run into many former Lutes that are taking good care of Elsa and Jonas.
God Bless.
Dan & Mari
WOW... your narrative brings back the memories...
ReplyDeleteSo, first let me say that our family will be praying for yours. Our thoughts will definitely be with you all for the coming months.
While similar, our experience does not have near the weight that your journey will hold. I remember how all consuming it all was... like time stood still.
I remember feeling helpless as the NICU staff took over as you describe so well. It was hard to have to rely on others for the welfare of your child, at least for me.
We were able get to know a couple of the other families in the NICU and it really helped to be able to talk with someone who understands the gravity of the situation. With that said, if you EVER need to chat, talk, vent, cry... whatever let me know.
Hang in there, take the charity of others and know we are all thinking of you!
Rob
Let's go little man, and let's see those lungs grow stronger! We're thinking and praying for the family. Fortunately, I have a good feeling about the genetic tendencies to be stubborn, so this is a good time to play into those strengths!
ReplyDeleteJonas looks like he's going to have some monster hands--look at those fingers. And I can't quite see much of Elsa in the picture, but if you take a step back, shake your head a sec, and look again, it looks like a little like a disco hall. Probably can sound like it too with some of the beeps and bops of the equipment.
And keep chugging a long little ones, I'm thrilled to hear that you're hungry hippos.
And I'm glad to hear and know that you are all in good hands and with good people. This will make what is a difficult time much better, and in the end, it's still a beautiful moment to watch your little ones shine in the spotlight. They are adorable (even if I can't quite see all of them just quite yet--let's get those shades off soon!)
And yes, I'm dumb...click on the pix Matthew and they get bigger! But I still defend that it looks like a disco hall.
ReplyDeleteBeautiful and precious little angels!
ReplyDelete