When it comes to the people you love, your heart and whole being wants them to be well and continually improving. We have been warned and our minds know that this journey will have both ups and downs, but it still doesn't fully prepare you for the setbacks.
Jonas was having a tough time on his ventilator. His tube was leaking making it difficult for him to get the oxygen he needed. They decided to intubate him with a new, bigger tube and try the Drager ventilator (the next step up). This went well for a while on Sunday, but later in the day his blood gases came back with several poor results and Sunday night they put him back on the oscillating ventilator. We have been told that this is common that babies may need to go back and forth a bit, but it was still hard because he was having such a tough time. They are also holding his feedings because he has been through a bit of trauma in the past 24 hours. On the up side, he did open his eyes for the first time that we had seen on Sunday--the picture above is of his little peepers. Monday he was pretty quiet and stable as well. For this we are thankful.
Elsa's infection cleared (yeah!) and she was able to receive her PICC line Sunday night. Things seemed well with her, so we were surprised today when they made the decision to put her on the oscillating ventilator as well (a step back). Her blood gases had been coming back with a high level of carbon dioxide and they were having to use a large amount of pressure to get oxygen into her lungs. As one of the nurses explained it, this is just a different ventilator and it will be more gentle on her lungs. These tiny precious beings need time to grow and heal and grow some more. In the tougher days it is hard to have patience, but we still have hope.
Thank you for all your support, prayers, and hope.
God Bless,
Mari & Dan & Elsa & Jonas
I am thinking about you guys. Thank you for having this blog so that we can get updates on those beautiful kiddos. Let me know if there is anything I can do, and remember our home is open for you guys!
ReplyDeleteMari and Dan, You have received so much from people who love you...meals, open doors, open arms. I wish I could do more to help. But please know that prayer is what I can offer from this distance, and I continue to pray that God will strengthen and heal and help those little bodies grow, and strengthen and heal and grow some more. God has all four of you in the palm of His hand. I will continue to lift you up. Thanks for the update. Keep 'em coming.
ReplyDeleteHugs, Kim and family
Hi Mari, Dan,.....thanks for sharing your days with your precious Elsa and Jonas. We can sure see those "peepers"...how cute:)
ReplyDeleteLove, and Prayers, Jane and Ralph
Dan, thanks for the updates. We offered up a Rosary for Elsa and Jonas. Will do so every week. Thinking about you, Mari and the little ones all the time. Silvia
ReplyDelete