Greetings!
We had a busy week as we alluded to in our last post. Elsa had two big doctor appointments this week.
The first appointment was with the cataract specialist at mary bridge. We had been referred to him from the NICU specialist that we have worked with for the past year. The appointment went very well. We were very apprehensive about what cataract surgery might mean for Elsa and weren't sure if it was something that would be happening in the near future or in many years. Based on the specialist's opinion, Elsa's cataracts need to go. This means that in the next couple of months we are going to closely monitor her eyes and most likely schedule cataract surgery in July or August. To be honest, we felt very relieved talking with the doctor and feel very comfortable with the decision.
The second appointment was with the GI specialist. This was the meeting to look at weight gain and determine when to place the g-tube in Elsa. The dietitian had told us last month that Elsa should really be gaining between 12 to 17 ounces a month...she squeaked in last month with a 12 gain. This month we got her down to her skivvies and put her on the scale...(I will over dramatize this a bit--but we were holding our breath the entire time)
1 ounce
2 ounces
3..4...5...6
7..8...keep on going!!!...9....10...
11...12...(whew she at least hit 12)....
13...14...15...16...
17...18.... .. .. ... ..
19 ounce gain!!!
She hit a home run this month with her 19 ounce gain. The GI doctor came in and said that everyone else keeps telling him to just tube her but he sees so much promise and with a month like this he was completely comfortable waiting and seeing how she continues to do. We are hopeful that she continues to do so well. If she needs a g-tube at some point that is okay too. We are so proud of Elsa!!!
Jonas had a great week too! Lots of walking! He is helping type this post.
God Bless,
Jonas, Elsa, Mari & Dan
We had a busy week as we alluded to in our last post. Elsa had two big doctor appointments this week.
The first appointment was with the cataract specialist at mary bridge. We had been referred to him from the NICU specialist that we have worked with for the past year. The appointment went very well. We were very apprehensive about what cataract surgery might mean for Elsa and weren't sure if it was something that would be happening in the near future or in many years. Based on the specialist's opinion, Elsa's cataracts need to go. This means that in the next couple of months we are going to closely monitor her eyes and most likely schedule cataract surgery in July or August. To be honest, we felt very relieved talking with the doctor and feel very comfortable with the decision.
The second appointment was with the GI specialist. This was the meeting to look at weight gain and determine when to place the g-tube in Elsa. The dietitian had told us last month that Elsa should really be gaining between 12 to 17 ounces a month...she squeaked in last month with a 12 gain. This month we got her down to her skivvies and put her on the scale...(I will over dramatize this a bit--but we were holding our breath the entire time)
1 ounce
2 ounces
3..4...5...6
7..8...keep on going!!!...9....10...
11...12...(whew she at least hit 12)....
13...14...15...16...
17...18.... .. .. ... ..
19 ounce gain!!!
She hit a home run this month with her 19 ounce gain. The GI doctor came in and said that everyone else keeps telling him to just tube her but he sees so much promise and with a month like this he was completely comfortable waiting and seeing how she continues to do. We are hopeful that she continues to do so well. If she needs a g-tube at some point that is okay too. We are so proud of Elsa!!!
Jonas had a great week too! Lots of walking! He is helping type this post.
God Bless,
Jonas, Elsa, Mari & Dan
Hurray for great doctors, knowledgeable medical staff, and their intuitive skills. You all are blessed muchly and have innumerable milestones to celebrate and to be thankful for. Love you all. Thanks for your updates and your shared feelings. Always a joy to be allowed into you living space.
ReplyDeleteCheers, Unka Don and Delores