Greetings!
Tale #1...
Elsa had been taking her nasal cannula out by herself the past couple of weeks. After a while of this little game, the nurses and doctors decided that they would see how she could do without the nasal cannula during rest times. The rest times went well and then the doctors suggested that she try feeding without supplemental oxygen. This went well too. So, little Elsa, our sweet little girl, now has no supplemental oxygen and is hanging out in room air. Quite an accomplishment...room air at week 37! We are so proud of her.
Tale #2...
Jonas has had the J-tube in for a couple of days now. This tube lets his food bypass his stomach and dramatically cut down on his acid reflux. The first day with the new tube Jonas looked very unsure of this new change. But a funny thing happened over the next couple of days. He has been doing much better. His apnea and brady events have started to decline and he is down on his oxygen requirements. He spent much of last night in 24-25 percent oxygen on CPAP. Today, the doctor suggested that it was time to try the nasal cannula again while he is being held. I held Jonas for an hour on the cannula and he was a rock star! We are so proud of him too!
We are currently debating making some changes to how Elsa is fed...on demand versus every three hours. Over the next few days we might tweak this schedule. It would give her a chance to show if she is capable of eating all her food or if she still needs some via a tube. We are also waiting to see how Jonas responds to the nasal cannula. He needs to be steady on this in order to have a surgery for his hernias. We are hoping to have him on cannula for this surgery as opposed to being put back on the Drager ventilator for the surgery.
We continue to pray for healing and growth for Elsa and Jonas.
God Bless,
Dan & Mari & Elsa & Jonas
My goodness how things are improving and changing, we at Lake Lawrence continue to watch and talk of the babies and how they are doing you have many unknown friends and sources of prayers and good wishes. The children are amazing as are their parents, but no doubt above all else the medical staff. We wish you all well and notice the crocus are up maybe spring is not far off. Lets hope. The Lake lawrence Community
ReplyDeleteFantastic news! Both babies are making such progress! It's sounds like Elsa is nearly ready for the big journey home. Does Jonas has a date scheduled for his surgery? We will continue to pray for all!
ReplyDeleteBe blessed,
Jeff, Kim, and Kendall
Now, these are the kind of tales I can imagine put you to sleep well at night. Keep it up kids- you have so much love supporting you :)
ReplyDeleteLove, Laura, Ed and Jack (not whatever the google account has us listed as...)