Greetings,
Every day with our babies is a celebration. In some ways, it is hard to believe they have already been around for three months. On the other hand, I have gotten multiple, "You've been here a long time" comments from staff this week. Maybe it is beginning to show.... We celebrated three months today by singing happy birthday to each of them in Norwegian, doing some hand holding, and some cuddling.
Elsa continues to eat a little when she is awake and gets fed through her tube when she would rather be sleeping. Learning to eat is a slow process, but she is doing very well all considered, and we know she will continue to improve. She had her second bath given by mom today and seemed to enjoy it. She was a little more wiggly this time. It sure is difficult to hang onto a naked, wet, squirmy baby! But what a joy to be able to do something as normal as give her a bath. She was sure tired after getting clean and a full tummy--what a workout!
Jonas had a fairly steady day. He has a new tube that goes from his nose past the stomach into the jejunum (a new body term for me). The hope is that he will no longer reflux if there is not milk in his tummy to reflux up. In talking with the doctor this morning we are also hopeful that this new plan could help to heal his lungs as well. He was having significant reflux, so chances are that he was aspirating some milk into his lungs, which doesn't help the breathing or healing process. We are praying that he will rest and heal and grow out of these breathing issues. There is a chance he will need to have a procedure done later on because of how significant his reflux was, but we will cross that bridge when we get to it and keep praying for healing. Jonas also received a brain scan today (routine checking) and the eye doctor was going to follow up on his eyes tonight as well. I think Jonas was a little tired of all the prodding of late as he seemed a little agitated tonight. We are praying he sleeps well and will relax.
Thanks for your prayers!
Love,
Mari, Dan, Elsa and Jonas
Hi, we are friends of Heather Linderman (Johnson) and wanted to let you know that you have beautiful babies and that we will be praying for you and your family. We spent 50 days at TG and 5 weeks at Children's with our little guy Justus who has hydrocephalus. Hang in there and may God give you strength and endurance!
ReplyDeleteI forgot to mention that we were at TG while you guys were and never had a chance to run into you. We left on January 2. Please let us know if you need anything or would like to talk. We have traveled the very long road too.
ReplyDeleteWe love the pictures....they look so cute:) We're celebrating the moments with you!! Elsa and Jonas at the top of our daily prayers....we love you. Auntie Jane and Uncle Ralph
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