Greetings!
Wow. Jonas and Elsa are tough little cookies. They continue to grow while putting up with all our pokes and prods, face tape changes, ventilator weens, and a host of other minor inconveniences.
Both very patriotic yesterday during the new presidential inauguration. Elsa was sporting a new Grandma Jeanne created red shirt. Jonas opted to show off his abs and went shirtless in a clear nod to the new president's recent vacation photos from Hawaii.
Jonas has been pretty stable the past two days. He was being monitored for infections and so far there has been no growth in his blood culture. As a result of this monitoring, he has been off of continuous feeds and is back on an IV. Last night he had his IV removed from his forehead (not a look I really enjoy seeing but we know that the forehead was a good place for it). After a brief debate, the nurse decided that it made sense to put a PICC line back in leg. The nurse placed a new PICC line in him last night and he was sleeping sounding an hour later. We are hopeful that he will begin his feeds again today. He has continued to handle his ventilator weens well and is now in the low 30's on his settings. This is good progress as once he shows he can handle the ventilator in the low 20's for a while he may be ready for the tube to be removed.
Elsa continues to make progress as well. Her ventilator is now in the high 30's and she continues to tolerate her weens. She is chomping away on her continuous feeds and is nearly the same weight as Jonas. She has been very stable with few other changes to report. She loves to sleep with her hands tucked up by her chin and she continues to charm her nurses.
We continue to pray for Jonas and Elsa to heal in their lungs.
God Bless,
Elsa & Jonas & Mari & Dan
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We at Lake lawrence continue to watch and pray for all of you and marvel at modern medicine. What a story these kids will have to tell.
ReplyDeleteGod Bless
The Lake lawrence Community Club
We continue to pray for your little ones and hope this prayer finds them well.
ReplyDeleteGreetings Mari and Dan,
ReplyDeleteWe continue to thank you for sharing your reports of Elsa and Jonas. We read each day's episodes, full of energy and action and thankfulness. We read for 2-3 minutes, and you sit for many hours each and every day. We are with you those many hours---alway, in our thoughts and hearts and prayers. We wish we could be closer to share our love and hopes and just being there-with small talk. You give us that support that you hope we are giving you. It's an incredible irony, my dears. For our sake as well as yours, thanks for keeping close to us. We love you all very much. Don and Delores
Mari and Dan,
ReplyDeleteSpoke to Mary Ann tonight and she sends her love and hope to you and your babies- as always with her positive spin on all things. Love is a powerful thing- more than we know. You and your babies are loved by us all. your loving friends and coaches- Lisa and Mary Ann