Greetings!We are happy to say that there have been another couple of steady days for our babies. Jonas was doing well on his ventilator settings until the late afternoon on Saturday when he was needing more and more oxygen to meet his needs (he was up into the 70% range). The doctor decided to put him back on the heavy sedation to help him rest again and not fight against the ventilator. Since then he has also received a blood transfusion. When we went in today, Jonas was on 30% oxygen and doing really well. Some of his test results suggest that he might have an infection, so he was started on some anti-biotics while they wait to see if his blood cultures grow anything. He was also was able to continue his feedings of milk and is doing well with them and is weighing in at 1 lb 10 oz! In the picture above while the nurse was repositioning him after his care time, Jonas thought resting his head in his mommy's hand was a really comfortable position to be in.
Elsa is continuing to be steady and stable. She is also in the 25-35% range for oxygen, which is good. Her continuous feeds are going well. She had a blood transfusion the other day as well, and it seemed to give her a boost and allow her to stay more stable on her oxygen needs throughout the day. She is weighing in at 1 lb. 7 oz. We are enjoying seeing her eyes open once in a while. We are just so thankful for a couple days in a row that the babies are able to rest and grow and have some forward progress.
We continue to feel blessed by your prayers and interest in how things are going.
God bless,
Mari, Dan, Elsa, and Jonas
They are growing! It is so nice to hear they are doing well. We will pray Jonas' test results are negative for infection.
ReplyDeleteDan, Mari, Jonas, Elsa
ReplyDeleteIt is so good to hear that the four of you have had a couple of days moving forwards. JoAnn and I have been with you in spirit and prayer while reading in your blog of your life giving experiences over the past three weeks. Jonas and Elsa are certainly fortunate children. What they may lack in physical stamina they certainly have made up for in loving and caring parents and extraordinary medical professionals. It has also been good to share many joys and concerns with Paul and Jeanne – they are wonderful grandparents. Thank you so much for allowing us to share in this incredible journey, your blog has been inspiring. God Bless, and know that we are with you. Jerry and JoAnn Lejeune.
It is amazing to see how much they have grown in just a few weeks! Nick and I are praying for the whole family! It's good to hear you have had a couple good days.
ReplyDeleteA fellow Lute here....praying for your beautiful miracle babies. Grace be to God!
ReplyDeleteI have been reading your story of your children but only now figured out how to post a comment. Wanted you to know that we are thinking and praying for your family. We are thankful for those 2 precious children and their loving parents. Helen Wigstrom
ReplyDeleteHeard from the WHS grapefine (Bethany via Karlie) about your babies. Been checking back for a few days and happy to hear Elsa and Jonas are on an upswing.
ReplyDeleteYou have a lot of people out hear praying for you and and sending many loving, healing thoughts.
Love you.
Laura Kingston (Ed & Jack, too)