Greetings,
Entering the hospital for care time each day, we typically go to Jonas's isolette first, since his care time comes first, and then make our way over to visit Elsa. On Saturday as I was visiting with Jonas and waiting for his care time, one of the nurses passed by and asked what I thought of Elsa's new hardware. I had no idea what she was talking about so I went over to take a look and was shocked to find Elsa on CPAP! Apparently she had decided it was time. She pulled her ventilator tube out herself, so the doctor decided to give her a try on CPAP and as of Sunday evening she is doing great. Her blood gases have been coming back with good results. When the doctor stopped by to chat with us he was laughing about the fact that they had been discussing that morning when to give her a try with CPAP and they had not come to a conclusion yet. She is a girl who knows what she wants and yesterday was her day. I'm not sure she is so happy about the new mask, but it must be a step up from the tube down your throat. I also had the opportunity to do some kangarooing with her tonight. She slept peacefully and even sucked her thumb a bit. It was just wonderful.
Jonas is doing a great job of holding steady on his ventilator, his feeds, and his digestion. He continues to grow and seems very peaceful when we visit him. Maybe he just needed his big sister to lead the way and show him how it's done with the CPAP. We know he will get there when his lungs and brain are ready.
It is amazing what a difference a couple of days can make. We continue to be thankful, hopeful, and prayerful.
God bless,
Mari, Dan, Elsa, and Jonas
What a blessing to watch these two precious children develop....how I love reading what you two dear parents write about your babies....they are so sweet and you are troopers in the highest form to keep the care of them as you do....each blog entry gives more hope and ways to pray for the babies....I love seeing the tiny clothing and I imagine Grandma is knitting and making little baby clothes all of the time!! I see stiches on blankets and little vests and sweaters with bows....adorable and helps keep worry away to be loving sticking for the babies!
ReplyDeleteOur prayers and love continue for you all with strength and love to permiate your family as you grow closer every day....what a blessing that you are able to spend time with the darling babies....and with each other as well during this time....
God be with you and continue to encourage you each day...
Much love,
Trish Ellis and kids, Tony Pound and family and Tina (Pound)Wrona....
That is so freaking awesome...I'm loving how Elsa loves to spring little surprises on you. Hip hip hooray for CPAP! It looks like sweet SCUBA gear. Get her some little flippers!
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ReplyDeleteCongrats Elsa!!! That is a great way to surprise your family; way to keep everyone on their toes!!! Keep up the great work and we will keep praying for you and Jonas and your wonderful parents!!!
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