Greetings, All.
Elsa and Jonas slept well through the night. Both are enjoying a full belly of milk every four hours.
We did receive some hard news yesterday. The analogy of the roller coaster keeps getting mentioned to us about our time in the NICU. You know the dips of the roller coaster are coming up...you've heard about how scary and frightening it is when it takes the dip...you feel prepared for the dip...yet the dip is still scary. Elsa's brain scan showed a level four brain bleed...the most severe...yesterday. That means she is at a higher risk for learning disabilities and cerebral palsy. We have had an onslaught of emotions and feelings...anger, denial, sadness, and hope. We continue to ride the roller coaster another day.
Jonas did not show any signs of brain bleeds. Hurray!
God Bless,
Dan & Mari
Elsa and Jonas slept well through the night. Both are enjoying a full belly of milk every four hours.
We did receive some hard news yesterday. The analogy of the roller coaster keeps getting mentioned to us about our time in the NICU. You know the dips of the roller coaster are coming up...you've heard about how scary and frightening it is when it takes the dip...you feel prepared for the dip...yet the dip is still scary. Elsa's brain scan showed a level four brain bleed...the most severe...yesterday. That means she is at a higher risk for learning disabilities and cerebral palsy. We have had an onslaught of emotions and feelings...anger, denial, sadness, and hope. We continue to ride the roller coaster another day.
Jonas did not show any signs of brain bleeds. Hurray!
God Bless,
Dan & Mari
I will continue my prayers for your little miracle babies, and pray the bleed resolves itself without lasting effects.
ReplyDeleteShe will not quit, and she is inspiration. She's going to take every moment she can to heal, that's for sure. Tough, tough cookie. Little E and J and, you are in our thoughts and prayers--we love seeing you little cuties. Say hello to Mom and Dad through the sauna doors--please tease them about how cold it is outside!
ReplyDeleteDan and Mari you and the little angels are in my prayers. Sue K
ReplyDeleteYou are all in our prayers every day Dan!
ReplyDelete